Abstract
Genetic databases would not exist without the input from donors. Their samples and their associated information are the foundation of their existence. Genetic databases contain very personal, sensitive information and, if misused, could lead to any number of potential harms for the donor. Consequently, the operation and use of genetic databases should meet the highest ethical standards backed up by effective regulations and legislation. The aim of this chapter is to first describe genetic databases and their function before turning to two of the most controversial ethical issues that surround genetic databases, namely privacy and informed consent, and describe how the Australian Government has so far responded to these challenges. It will close by turning to an explicit example, the National Criminal Investigation DNA Database (NCIDD), which is one of a web of databases overseen by the CrimTrac agency of Australia.
| Original language | English |
|---|---|
| Title of host publication | The Moral, Social and Commercial Imperatives of Genetic Testing and Screening: the Australian Case |
| Editors | Michela Betta |
| Place of Publication | Dordrecht, Netherlands |
| Publisher | Springer |
| Pages | 71-93 |
| Edition | 1 |
| ISBN (Print) | 1402046197, 9781402046186, 1402046189, 9781402046193 |
| DOIs | |
| Publication status | Published - 2006 |
Publication series
| Name | International Library of Ethics, Law, and the New Medicine |
|---|---|
| Number | 30 |
| ISSN (Electronic) | 1567-8008 |
UN SDGs
This output contributes to the following UN Sustainable Development Goals (SDGs)
-
SDG 16 Peace, Justice and Strong Institutions
Keywords
- Ethical Use of New Technology (eg Nanotechnology, Biotechnology)
Fingerprint
Dive into the research topics of 'Genetic Testing and Human Genetic Databases'. Together they form a unique fingerprint.Cite this
- APA
- Author
- BIBTEX
- Harvard
- Standard
- RIS
- Vancouver