Ethical and privacy issues in genetic databases

Helen Giggins; Ljiljana Brankovic

Ethical and privacy issues in genetic databases

Helen Giggins
, Ljiljana Brankovic

Computer Science

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution › peer-review

Abstract

With the recent advances in genetic and computer technology, enormous databases containing genetic information have become available for research and other purposes. An example of such databases is the Icelandic Health Database containing health and genetic records about the total population of Iceland. This has raised many privacy and ethical questions, both among health professionals and the general public. Many agree that genetic information bears more ethical and privacy concerns than other health databases. In this paper we review the main privacy and ethical issues connected to genetic information and we pay special attention to disclosure of individual values through statistical analysis.

Original language	English
Title of host publication	Proceedings of the 3rd Australian Institute of Computer Ethics Conference (AiCE2002)
Editors	Matthew Warren, John barlow
Place of Publication	Australia
Publisher	Australian Institute on Computer Ethics
Pages	39-50
ISBN (Print)	0730025608
Publication status	Published - 30 Sept 2002
Event	AICE 2002: 3rd Australian Institute of Computer Ethics Conference (AiCE2002) - Sydney, Australia Duration: 30 Sept 2002 → 30 Sept 2002

Conference

Conference	AICE 2002: 3rd Australian Institute of Computer Ethics Conference (AiCE2002)
City	Sydney, Australia
Period	30/09/02 → 30/09/02

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title = "Ethical and privacy issues in genetic databases",

abstract = "With the recent advances in genetic and computer technology, enormous databases containing genetic information have become available for research and other purposes. An example of such databases is the Icelandic Health Database containing health and genetic records about the total population of Iceland. This has raised many privacy and ethical questions, both among health professionals and the general public. Many agree that genetic information bears more ethical and privacy concerns than other health databases. In this paper we review the main privacy and ethical issues connected to genetic information and we pay special attention to disclosure of individual values through statistical analysis. ",

author = "Helen Giggins and Ljiljana Brankovic",

year = "2002",

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day = "30",

language = "English",

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booktitle = "Proceedings of the 3rd Australian Institute of Computer Ethics Conference (AiCE2002)",

publisher = "Australian Institute on Computer Ethics",

note = "AICE 2002: 3rd Australian Institute of Computer Ethics Conference (AiCE2002) ; Conference date: 30-09-2002 Through 30-09-2002",

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Giggins, H & Brankovic, L 2002, Ethical and privacy issues in genetic databases. in M Warren & J barlow (eds), Proceedings of the 3rd Australian Institute of Computer Ethics Conference (AiCE2002). Australian Institute on Computer Ethics, Australia, pp. 39-50, AICE 2002: 3rd Australian Institute of Computer Ethics Conference (AiCE2002), Sydney, Australia, 30/09/02. <https://hdl.handle.net/1959.11/62262>

Ethical and privacy issues in genetic databases. / Giggins, Helen; Brankovic, Ljiljana.
Proceedings of the 3rd Australian Institute of Computer Ethics Conference (AiCE2002). ed. / Matthew Warren; John barlow. Australia: Australian Institute on Computer Ethics, 2002. p. 39-50.

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution › peer-review

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N2 - With the recent advances in genetic and computer technology, enormous databases containing genetic information have become available for research and other purposes. An example of such databases is the Icelandic Health Database containing health and genetic records about the total population of Iceland. This has raised many privacy and ethical questions, both among health professionals and the general public. Many agree that genetic information bears more ethical and privacy concerns than other health databases. In this paper we review the main privacy and ethical issues connected to genetic information and we pay special attention to disclosure of individual values through statistical analysis.

AB - With the recent advances in genetic and computer technology, enormous databases containing genetic information have become available for research and other purposes. An example of such databases is the Icelandic Health Database containing health and genetic records about the total population of Iceland. This has raised many privacy and ethical questions, both among health professionals and the general public. Many agree that genetic information bears more ethical and privacy concerns than other health databases. In this paper we review the main privacy and ethical issues connected to genetic information and we pay special attention to disclosure of individual values through statistical analysis.

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BT - Proceedings of the 3rd Australian Institute of Computer Ethics Conference (AiCE2002)

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Y2 - 30 September 2002 through 30 September 2002

ER -

Ethical and privacy issues in genetic databases

Abstract

Conference

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